North Carolina is in the process of seeking approval by the Centers for Medicaid and Medicare Services to add āiā home and community-based services (HCBS) under our stateās new 1115 Medicaid plan. These āiā HCBS services would offer additional supports to people with disabilities who are eligible for Medicaid. NC DHHS has requested that most…
Parent to Parent, Part 2: Practical Considerations for End-of-Life Planning
In part one of this two-part series, we addressed the fact that parents and caregivers for loved ones with disabilities such as autism will need to plan in advance for their eventual death to ensure the appropriate steps are taken for their loved one in their absence. In abstract terms, this process includes envisioning the…
Parent to Parent, Part 1: Addressing the Hardest Questions of All
Often, parents and/or caregivers of individuals with autism are told by friends and family how resilient we are. While others may see the daily struggles we face, they are probably not aware of the anxiety we may have when we think of the inevitable: the time when we will no longer be here to care…
Planning for School, Step 2: Getting Organized
Editorās note: This is part of a series of articles. Click here to read the first one. By now you should know which plan your school district has selected to begin the school year. If you are not sure, contact your childās school or check the district website. We do know that every student will…
Planning for School, Step 1: Understand Your Options
Anxiety is running high these days, and one of the big stressors is what the coming school year will look like for our kids. On July 14, Gov. Cooper announced that each of the school districts in North Carolina will operate under their Plan B scenario for reopening under moderate COVID-19 conditions, with the option…
Working through the Challenges of Wearing a Mask
As wearing a mask becomes our new normal, supporting an individual with autism to wear one for any amount of time might feel like a mountain to climb. In this blog, I will discuss potential reasons it can be particularly challenging for individuals with autism to wear masks, some alterations/adaptations to try, and suggestions for…
The Health of Our Aging Adults
Over 30 years ago, after our suspicions were confirmed that our young daughter did indeed have autism, we asked a question that many of you also may have contemplated: āWhat is the normal life expectancy of someone who has autism?ā We were given a fairly encouraging yet vague answer: āWe really donāt know for sure,…
Escape into Learning
In the United States, everything shut down in March. Support services, places to go, things to do. Routines and expectations have been taken away from us all. Like most of us, I have been silenced by the change. This is an uncharted territory. We have been figuring out what to do with what little advice…