This policy update contains both an update on the North Carolina General Assembly (state laws) as well as actions by the US Congress and federal regulators (federal laws). North Carolina General Assembly Update Group Home Bill Moves House Bill 5, which would extend temporary funding to residents of group homes who no longer qualify for personal care services,…
Legislative Long Session Kicks Off! What Might the Session Hold For People on the Spectrum?
This week marks the beginning of the North Carolina General Assembly long session, which typically lasts from the end of January to sometime in June/July. Lawmakers arrived for work in Raleigh over the last two weeks and began organizing for the session, with new legislators receiving training. There are a LOT of new folks – of…
Getting the Most out of the Holiday Season
by Linda Griffin, Parent Advocate Director The holiday season is upon us – a time of joy and excitement. But for parents of children with autism, it may only bring excitement (also known as chaos)……and very little joy. Sometimes this lack of joy is simply because we have unrealistic expectations. We’ve seen too many idyllic…
Action Needed: Personal Care Medicaid Changes Threaten Group Home Residents
Recent news reports have shed light on changes that will have a negative effect on individuals with Autism Spectrum Disorder and other disabilities who receive assistance through Medicaid’s Personal Care Services (PCS). Please note that the Personal Care Services described in this blog are not the same personal care services delivered to individuals who are…
Stuffed Allies and Dignity: How Understanding Anxiety Can Save the Day
Editor’s Note: This week’s blog post was submitted by Jennifer O’Toole, award-winning author of Asperkids: An Insider’s Guide to Loving, Understanding and Teaching Children with Asperger Syndrome. O’Toole, her husband, and her three children all have Asperger Syndrome. The year was 1982. Ronald Reagan was in office. “Don’t You Want Me, Baby?” was on the…
Corporal Punishment in NC Schools – Progress Report
The following article was written by Linda Griffin, Parent Advocate Director for the Autism Society of North Carolina. In July 2011 we posted a blog article about the shocking use of corporal punishment in NC public schools. At that time we reported that 38 NC school districts allowed corporal punishment and 16 of those schools…
Why I Run and Walk for Autism
Beverly Moore is Chair of the Board of Directors for the Autism Society of North Carolina (ASNC). This guest Blog includes her comments to the participants at the recent WNC Run/Walk for Autism where she shares why it is important for parents, family members, friends, and the community to support the annual ASNC Run/Walk for…
Staying Two Steps Ahead: Safety in the Community and at Home
Parents worry about their children’s health, happiness, and well-being, but parents of children with autism spectrum disorder (ASD) must look at their environment closely and take great care to ensure that their kids are safe both inside and outside the home. Why is safety for the person with ASD different from any other safety measures…