Throughout my life when I was asked to describe myself, I constantly had no clue as to what to do. I had masked myself into a corner, To myself I was even a foreigner. Then at thirty-one the dials on the locks began to click, Suddenly it all fell into place so quick. How…
Our Position on Applied Behavior Analysis
There is confusion and controversy regarding Applied Behavior Analysis (ABA), particularly when used as a comprehensive treatment for individuals with autism. Applied Behavior Analysis within the autism community is endorsed by many and criticized by others. It is a topic that evokes passion and emotional responses because of the perceptions, sometimes inaccurate, of how ABA…
A Parent’s Perspective on Handling Meltdowns
Meltdowns happen. Meltdowns happen first thing in the morning, right before bed, and all the times in between. They happen at your in-law’s house, at the grocery store, and during religious services. Meltdowns seem to be the number one reason that parents seek a diagnosis of autism for their child. That was true for me…
Public Policy Update
Listen to our latest podcast about these policy developments. Federal Actions American Rescue Act: Congress passed an additional COVID and economic relief bill – the American Rescue Plan (ARP) – in early March. The legislation includes a number of items meant to address ongoing problems related to the pandemic including $1,400 stimulus checks for many Americans (including dependents and individuals with disabilities); an extension of unemployment benefits; additional funding…
On Empowerment: Where to Begin When Building Self-Advocacy Skills and How to Be a Better Ally
Note: This post originally appeared in the Winter 2021 issue of Spectrum. For any individual, empowerment is crucial when it comes to the creation of a meaningful life—one that is embedded with communication, choice, and opportunity. These positive outcomes are often spoken about when speaking about empowerment, but there is a dark side……
Update on Medicaid Transformation: What You Need to Know
The NC Department of Health and Human Services (DHHS) is in the process of implementing Medicaid transformation in North Carolina. In this process, Medicaid recipients will have their health services transitioned from a fee-for-service model to managed care, which allows for physical and behavioral health services to be administered in one plan. Our state’s plan…
Public Policy Update
Federal Actions American Rescue Plan Act: Congress continues to debate the contents of the next round of Federal economic and pandemic related relief. The US House passed the American Relief Act on February 27 and the Senate Passed its version of the bill over the weekend of March 6-7. The legislation includes $1,400 checks for many Americans (including dependents and individuals with disabilities), an extension of unemployment…
Vaccine Priority Update
The North Carolina Department of Health and Human Services announced several updates regarding COVID-19 vaccine administration on March 2, 2021. Included in the updates are changes to the vaccination priority for people with intellectual and/or developmental disabilities, including autism. We want to extend our sincere appreciation to Secretary Dr. Mandy Cohen, Deputy Secretary Dave Richard,…
Vaccine Priority for People with Autism
Increasing evidence is showing that people with intellectual and/or developmental disabilities (IDD) are at much higher risk for contracting COVID-19, for being hospitalized with the illness, and an increased mortality rate from the illness. A Johns Hopkins analysis of insurance data indicates people with IDD are three times more likely to die when infected with…