Tailored Plans Delayed until October 1, 2023 NC Department of Health and Human Services (NC DHHS) announced that the new Tailored Plans under Medicaid will be delayed again, this time until October 1, 2023. Citing concerns that people would have difficulties using primary care physicians and specialty health care services (“network adequacy”) and that other…
Differences in Autism Presentation Between Siblings
I don’t remember when my parents told me that my little brother was autistic. I don’t remember a time when I didn’t know; my memory doesn’t go back that far. He was diagnosed when I was around five or six, per his age of diagnosis at three. I’m a late-diagnosed autistic, not receiving my diagnosis…
Policy: Celebrating Progress and Looking Ahead
This article also appears in the Winter 2023 issue of Spectrum. When you have been advocating for a long time, it can feel like no progress is being made. When we see growing waiting lists and know that services for people with disabilities remain unstaffed, it is easy to lose hope. There is good…
Autism Diagnosis for Adults: Frequently Asked Questions
While many people with autism receive their diagnosis in childhood, others make it to adulthood before recognizing signs and receiving a formal diagnosis. If you are an adult who suspects you may be on the autism spectrum, we’ve prepared this list of questions about pursuing an autism diagnosis. What are some signs that I…
Pets and Autism: Challenges and Solutions
Pets are an amazing way for autistic children to experience companionship, understand boundaries, share responsibilities, and reduce anxiety. Caring for an animal also provides opportunities to learn new skills — such as patience, empathy, communication — while also supporting an avenue of emotional expression. It’s important for all families to do some research on the…
From Isolation to Community through Employment
Since I wrote my last blog, What’s Speech Got to Do With It?, in 2019, my son, along with the rest of the world, went through a rollercoaster cycle of emotions due to the pandemic, ranging from fear, insecurity, isolation, and utter frustration. His volunteer activities as well as other outside activities came to a…
Medicaid Transformation and Tailored Plan Updates
For additional information about the Medicaid Transformation process in North Carolina, please visit our page of information and resources. New timeline released for Tailored Plan rollout The start of the new Tailored Plans, integrated health Medicaid Benefit Plans for people with intellectual and/or developmental disabilities (I/DD), as well as those with significant mental health and…
The Samantha R vs. the State of North Carolina Court Decision
In February of 2020 the State was found to be in violation of the Persons with Disabilities Protection Act and that people with disabilities in North Carolina were being unnecessarily institutionalized, or were at risk for being institutionalized, due to a lack of community-based options. The decision reinforced what people with disabilities, their families and…